https://batemanhornecenter.org/assess-orthostatic-intolerance/
Gene Study
Dr. Nancy Klimas’ ME/CFS Gene Study at Nova Southeast University is still seeking patient and healthy volunteers. If you are interested, you can send a message to Helpdesk@njmecfsa.org and we will forward it to the study. More information can be found at https://sharkmedia.nova.edu/m…/ME+CFS+Genes+Study/1_06vh90p0
This is a chance for both patients and healthy volunteers to participate.
Categories: Breaking News
Follow-Up to Letter to NIH Director Collins
Read about the encouraging results at:
Categories: Breaking News
Missing Millions – Part 2
Calling all ME patients, allies, family, friends, caregivers, medical providers and researchers: Let’s join together to make this invisible illness visible! Please join us in Morristown, NJ for two hours on September 27th (location TBD).
#MillionsMissing and www.njmecfsa.org is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP and follow updates here: https://www.facebook.com/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/
You may also RSVP and follow updates here: https://www.facebook.com/
#MillionsMissing is dedicated to the millions of Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome) patients missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. At the same time, millions of dollars are missing from research and clinical education funding that ME should be receiving. And millions of medical providers are missing out on the proper training to diagnosis and help patients manage this illness.
You may also RSVP here: https://my.meaction.net/
Categories: Uncategorized
First Approved ME/CFS Treatment in the World
Hemispherx Biopharma Announces Major Breakthrough:
Approval for Commercial Sale of Rintatolimod (U.S. Tradename: Ampligen®) to Treat Severe Cases of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the Argentine Republic First Product Approved for ME/CFS Indication Anywhere in the World.
Ampligen Approved in Argentina – First in the World 2016-08-23
Categories: Breaking News
2016 Membership Renewal
August is Membership Renewal Month
Please support the work of NJME/CFSA. See information at the link below.
Categories: Breaking News
Announcing the Winners of #MEAction’s Poetry Contest!
Link includes the 10 poems. http://bit.ly/1UICjb5
i.e. http://www.meaction.net/…/…/meactions-poetry-contest-winners
Categories: Breaking News
Medical Scholarship – See Scholarships tab at top of this page
Categories: Breaking News, Scholarships
Facebook Posts
Be sure to check out the NJME/CFSA Facebook page regularly for recent posts.
https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451/
Categories: Breaking News
Trustee Kenneth Friedman, PHD participated in ME/CFS Awareness Day Panel
ImmuneDysfunction.org celebrated ME/CFS Awareness Day in the U.S. (May 12th, 2016) by holding a live television panel discussion concerning ME/CFS and Lyme disease on CCTV in Burlington, VT. I was honored to be included in the panel which consisted of physicians, an ME/CFS research and a VT State Senator; all of whom informed the audience of their perspectives on these illnesses. For a look at the discussion, see
https://www.facebook.com/New-Jersey-Chronic-Fatigue-Syndrome-Association-Inc-NJCFSA-141665745869451
Categories: Breaking News, Uncategorized