The federal government is looking for Good Day/Bad Day Pictures of Children with ME/CFS to mount on a parents’ ME/CFS information website. It is part of an Information and Resources site for children with various disabilities.

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) Pediatric Working Group reviewed the revisions for the website.  It is looking pretty good, but could benefit from the graphic to make the point that these kids look perfectly “normal” on a good day and look absolutely lousy when sick.  Both parent and child must agree to the placement of the photos on an open-to-the-public website.

Photos are needed by Sunday night (May 20^th.)  Send as attachment to: Kenneth.j.friedman@gmail.com

Thank you,
Kenneth J. Friedman, Ph.D.
CFSAC Pediatric Working Group

“Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: What Every Family Physician Needs to Know”

By Mary Dimmock, Susan Levine, MD, and Terri L. Wilder, MSW

New York State Academy of Family Physicians’ Winter 2018 “Family
Doctor” journal (p.23-25)

It ends:
“Most importantly, the family physician can validate the patient’s
experience and ensure that the patient is not harmed by inappropriate
treatment recommendations for exercise or talk therapy intended to
convince the patient they are not ill.”

https://tinyurl.com/ycb8mxzg
i.e.
http://www.nysafp.org/NYSAFP/media/PDFs/Family%20Doctor/Family-Physician-Winter-2018WEB.pdf

INFO – UNREST PBS showings and Bergen Mtg dates.
This was provided by the Bergen ME/CFS/FM Support Group
If you have a DVR you can set the program to record. Search “Independent Lens” for UNREST on PBS next week. I found the following dates and times:

Channel 13 – Jan 8 at 10pm 
Channel 13 – Jan 11 at 4:30 am
Channel 21 – Jan 9 at 12 am
Channel 21 – Jan 10 at 8:30 pm
Channel 11 – Jan 11 at 3:30 pm
Channel 21 – Jan 11 at 12 pm